This page is a work in progress! My goal is to have a comprehensive list of tips and hints that have helped us get through the leg lengthening process. Such as:
A hand held shower head for leg washing is necessary in my opinion.
Generic q-tips for pin care (the pricey ones are too soft and get fuzz stuck on pin sites).
Get as many supplies from the hospital as you can before you go. Once they open a package of anything for your child they can’t use it on anyone else so you may as well take it home.
Medical tape is helpful for keeping struts form turning on their own if you child has a taylor spacial frame. (Nicholas has only had the TSF).
Playing stillness contest during x-rays has made it fun for Nicholas and he almost never has to redo one.
Nordstrom offers a split-size service to those who have a difference of at least 1 ½ sizes between each foot. Split-size shoes cannot be ordered on their website; however you can place an internet order over the phone by calling 888.282.6060, 24 hours/day, seven days/week. This service is also available in stores. The shoes can be pricey but it is helpful. Most of the time we buy 2 pairs of shoes at payless.
Often a shoe repair shop will charge less for adding a lift to as shoe than a prosthetics and orthotics place.
Instructions for making covers and adaptive clothing for those of us with little sewing experience coming soon.