I am proud of many things in my life. I wont go listing them in order of importance or anything but one I have to mention is the group Fibular Hemimelia & Limb Lengthening Awareness! It really is at the top of my list right now! I started it. I try to check in regularly and help when I can. I know I don’t know everything about FH. Who does? Still the thing that makes me most excited is to see other mothers and fathers sharing and supporting one another.
Tonight a mom wrote to the group about her new baby’s fh. Her post was touching on many levels. The responses she received within minutes were amazing. It sends a clear message: YOU ARE NOT ALONE.
Sharing information and supporting one another is why I started the group! Thats it and it works.